North Star Ambulatory Assessment for SMA (NSAA for SMA)

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General Information
Background
Author/s or Creator/s
Scott, E
Mayhew A
Objectives
This is a functional scale for use in ambulatory individuals with SMA. It was developed for use in Duchenne Muscular Dystrophy and has been modified slightly for use in SMA.
Category of Outcome Measure
Functional
 
Disease Type
  Used Validated
Anterior Horn Cell Disease X  
Chronology of Development
A 17 point functional scale for use in ambulant individuals with Duchenne Muscular Dystophy was developed in the UK through the North Star Network. It was felt the scale was relevent to ambulant SMA patients as it addressed appropriate functional activites.
Time Information
Time to Recall
At Assessment
Recall Period
Not Applicable
Time to Complete
10 - 15 minutes
Application
Mode of Assessment
Administered by trained evaluator
 
Age Group
Children (2 to 11 Years)
Adolescents (12 to 15 Years)
Adults (16 Years and Over)
 
Age Related Limitations
The lower age limit of this test has not been established. Recommended from 4 years upwards. Some items will be influenced by developmental progress.
Languages
  Original Definitive Validated Translation Informal Translation
English UK X    
Conditions of Use and Contact Information
Conditions of Use
Free Access
 
Copyright Owner
North Star Network
Contact Name
Mayhew A
Organisation Name
ICH, UCL
Postal Address
Unknown
URL (Web Address)
Unknown
Email Address
anna.mayhew @ newcastle.ac.uk
Phone
01228 573713
Questionnaire/Scale
Domain Details
Number of Domains
Not applicable
Domain Name / Number of Items
Items Only
Total Number of Items
18 items
Additional Format Information
Items include stand, walk, standing on one leg, climbing up and down box step, rise from floor, standing on heels, jump, hop, run and step-ups. Rise from floor, 10 m run and step ups are timed tests. The items are scored from 0 to 2, with 2 = normal, no modification, 1 = modified method but independently achieved, 0 = Unable to achieve independently
Equipment
Equipment Required
Box step
Chair
Equipment Description
Box step is 15cm high
Response Details
Question Types and Usage
Unknown
Scoring
Total Score
Yes - total score is calculated.
Total Score - Range/Direction
0-34, HIgher being the better score
Sub-Score
No - sub-score is not calculated.
Sub-Score Range/Direction
Not Applicable