North Star Ambulatory Assessment (NSAA)

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General Information
Background
Author/s or Creator/s
Scott, E
Eagle, M
North Star Project Members
Objectives
Developed to measure functional motor abilty in ambulant boys with DMD.
Category of Outcome Measure
Functional
 
Disease Type
  Used Validated
Muscle   X
Chronology of Development
Appointment of physiotherapist to review outcome measures in DMD, review of literature - focus groups - small group formed of experts - decision on content - scale developed and tested - review of scale - validation with other therapists via video analysis - break out to wider group - widespread use in UK. Paper in preparation.
Time Information
Time to Recall
At Assessment
Recall Period
Not Applicable
Time to Complete
10 minutes maximum
Application
Mode of Assessment
Self administered on site
Administered by trained evaluator
 
Age Group
Children (2 to 11 Years)
Adolescents (12 to 15 Years)
 
Age Related Limitations
Must be ambulant with DMD.
Languages
  Original Definitive Validated Translation Informal Translation
English UK X    
Conditions of Use and Contact Information
Conditions of Use
Free Access
 
Copyright Owner
© 2011 MDC/NorthStar Clinical Network
Contact Name
Elaine Scott, North Star Co-ordinator: Michelle Eagle Consultant Physioterapist Newcastle:Anna Mayhew SMARTNET Co-ordinator
Organisation Name
Muscular Dystrophy Campaign UK
Postal Address
not applicable
URL (Web Address)
www.muscular-dystrophy.org/how_we_help_you/for_professionals/clinical_databases
Email Address
northstar @ muscular-dystrophy.org : michelle.eagle @ ncl.ac.uk : anna.mayhew @ newcastle.ac.uk
Phone
Not Applicable
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Questionnaire/Scale
Domain Details
Number of Domains
Not Applicable
Domain Name / Number of Items
Refer to Additional Format Information
Total Number of Items
17
Additional Format Information
17 activities are tested and graded 0-2, 0 unable, 1 with help or modified technique, 2 normal. Activites that are evaluated, Stand,Walk (10m timed),Sit to stand from chair,Stand on one leg - R,Stand on one leg – L,Climb stair - R,Climb stair – L,Descend stair - R,Descend stair – L,Gets to sitting (from lying), Rise from floor (timed), Lifts head, Stands on heels, Jump, Hop – R, Hop - L, Run.
Equipment
Equipment Required
Chair
Step
Equipment Description
The step height is 15cms.
Response Details
Question Types and Usage
Multiple Choice - with response determined by capacity to perfrom activity.
Scoring
Total Score
Yes - total score is calculated.
Total Score - Range/Direction
0-34, the higher the better.
Sub-Score
Yes - sub-score is calculated.
Sub-Score Range/Direction
A sub-score may be calculated by looking at individual items.
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Reference 1
Type of Reference
OM Materials
Reference Details
Muscular Dystrophy Campaign Website
Web Address (URL)
www.muscular-dystrophy.org/how_we_help_you/for_professionals/clinical_databases
Reference File ID
Not Applicable
Other Information
This is the Muscular Dystrophy Campaign Website, which contains background information about the NorthStar project and links to information for the NSAA, including a link to the NorthStar Assessment form.
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Reference 2
Type of Reference
Training Materials
Reference Details
Training Materials
Web Address (URL)
email: northstar @ muscular-dystrophy.org
Reference File ID
Not Applicable
Other Information
For more information in relation to training materials that are avialable for the NSAA, contact the MDC, North Star via email to northstar @ muscular-dystrophy.org
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Reference 3
Type of Reference
Validation Reference
Reference Details
E.S. Mazzone, S. Messina, G. Vasco, M. Main c, M. Eagle, et al.; (2009) Reliability of the North Star Ambulatory Assessment in a multicentric setting; Neuromuscular Disorders; Vol. 19; pp 458–461
Web Address (URL)
http://linkinghub.elsevier.com/retrieve/pii/S0960896609002466
Reference File ID
Not Applicable
Other Information
A study to investigate suitability of the North Star Ambulatory Assessment as a possible outcome measure in multicentric clinical trials.
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Reference 4
Type of Reference
Key Reference
Reference Details
Measurement in Duchenne muscular dystrophy: considerations in the development of a neuromuscular assessment tool; (2006) Developmental Medicine & Child Neurology; vol. 48; Iss.6; pp 540-544; Mac Keith Press; Copyright © 2006 Mac Keith Press; doi:10.1017/S0012162206001137
Web Address (URL)
http://journals.cambridge.org/action/displayAbstract;jsessionid=8B9376443C225334B91040F690105C7A.tomcat1?fromPage=online&aid=438489
Reference File ID
Not Applicable
Other Information
We are trying to overcome an issue with the link for this reference. In the interim, please copy and paste the full URL into your browser to access the relevant web page.
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Reference 5
Type of Reference
Miscellaneous
Reference Details
M. Eagle, E. Scott, M. Main, J. Sheehan, M. Michelle, M. Guglieri, V. Straub, K. Bushby.; (2007) G.P.1.08 Steroids in Duchenne muscular dystrophy (DMD): Natural history and clinical evaluation using the North Star Ambulatory Assessment (NSAA); Neuromuscular Disorders, Vol. 17; Iss. 9; pp. 774-774
Web Address (URL)
http://www.nmd-journal.com/article/S0960-8966(07)00235-0/abstract
Reference File ID
Not Applicable
Other Information
We are trying to overcome an issue with the link for this reference. In the interim, please copy and paste the full URL into your browser to access the relevant web page.
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Reference 6
Type of Reference
Miscellaneous
Reference Details
E. Mercuri, A. Mayhew, F. Muntoni, S. Messina, V. Straub, G. Van Ommen, T. Voit, E. Bertini, K. Bushby (2007) Towards harmonisation of outcome measures for DMD and SMA within TREAT-NMD; Report of three expert workshops: TREAT-NMD/ENMC Workshop on outcome measures, 12th–13th May 2007, Naarden, The Netherlands; TREAT-NMD Workshop on outcome measures in experimental trials for DMD, 30th June–1st July 2007, Naarden, The Netherlands; Conjoint Institute of Myology TREAT-NMD Meeting on physical activity monitoring in neuromuscular disorders, 11th July 2007, Paris, France; Neuromuscular Disorders, Vol. 18; Iss. 11; pp. 894-903
Web Address (URL)
http://linkinghub.elsevier.com/retrieve/pii/S0960896608005713
Reference File ID
Not Applicable
Other Information
Unknown
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Reference 7
Reference Type
Miscellaneous
Reference Details
TREAT-NMD Workshop on Outcome Measures in Experimental Trials for DMD, Naarden (2007)
Web Address (URL)
http://www.treat-nmd.eu/assets/documents/REPORT_13.pdf
Reference File ID
Not Applicable
Other Information
For more information please contact: info @ treat-nmd.eu