ACTIVLIM: a Rasch-built measure of activity limitations (ACTIVLIM)
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General Information
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| Objectives |
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ACTIVLIM is a measure of activity limitations for children and adults with neuromuscular disorders. The scale measures a patient's ability to perform daily activities requiring the use of the upper and/or the lower limbs, whatever the strategies involved.
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| Category of Outcome Measure |
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| Disease Type |
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Used |
Validated |
| Anterior Horn Cell Disease |
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X |
| Peripheral Nerve |
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X |
| Neuromuscular Junction |
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X |
| Muscle |
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X |
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| Chronology of Development |
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The ACTIVLIM questionnaire was designed to cover the widest range of daily activities and it included activities for children and for adults. The preliminary questionnaire included 138 items selected from various existing scales. These items were submitted to 32 experts on patients with NMD and to 23 NMD adult patients. The experts were asked to determine the relevance of the activities for a NMD child and for a NMD adult. The adult patients were asked to evaluate the perceived difficulty in performing each activity. Both experts and adult patients were asked to propose other relevant items not included in the original item set. As result, 126 items consituted the experimental version of the questionnaire. The ACTIVLIM questionnaire explored difficulties of performing daily activities that required the use of upper limbs or/and the use of lower limbs. The adult patients and the parents of affected children were asked to provide their perceived difficulty in performing each activity using a three-level scale: impossible (0), difficult (1), easy (2). Each activity must be completed without technical or human assistance. Activities unfamiliar to individual patients were recorded as missing responses (2.2 % of the data). The data were analysed with the Rasch Unidimensional Measurement Models computer program(RUMM2020, RUMM Laboratory Pty Ltd, Perth, Western Australia), a sofware allowing Rasch analysis. The Rasch model estimates the item difficulty and the patient activity level on a common linear scale from the responses given to each item within a probabilistic framework. This model is used to investigate response category functioning, scale unidimensionality, patient targeting and scale reliability. Starting from the 126 experimental items, well-established psychometric criteria were used to select the items that constituted the final ACTIVLIM scale. As a result, 22 items were selected and they defined a unidimensional variable on a linear scale. The construct validity was tested by examining the degree of association between the ACTIVLIM measures of patients and the Functional Independence Measure motor score (rho=0.85), Vignos and Brooke grades (rho=-0.83 and -0.63). The test-retest reliability of the adults’ and the parents’ responses was determined bysubmitting the questionnaire twice with a delay of 24 +/- 9 days (ICC= 0.96).
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| Mode of Assessment |
Self administered on site
Self administered off site
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| Age Group |
Children (2 to 11 Years)
Adolescents (12 to 15 Years)
Adults (16 Years and Over)
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| Languages |
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Original |
Definitive Validated Translation |
Informal Translation |
| Dutch |
X |
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| English UK |
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X |
| English US |
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X |
| French |
X |
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| Conditions of Use and Contact Information |
| Organisation Name |
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Unit of Rehabilitation and Physical Medicine
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| Postal Address |
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Av mounier 53 bte 5375, Brussels, 1200,
Belgium
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Questionnaire/Scale
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| Domain Name / Number of Items |
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Activity Limitations (22)
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| Additional Format Information |
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| Equipment Description |
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Only an internet access is required in order to transform the total ordinal into a linear measure of activity limitations using the Rasch model. The website is www.rehab-scales.org
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| Total Score |
Yes - total score is calculated.
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| Total Score - Range/Direction |
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-6 to 6 logits / Higher the measure in logits, higher the activity level.
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| Sub-Score |
No - sub-score is not calculated.
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| Sub-Score Range/Direction |
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Reference 1
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| Reference Details |
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Vandervelde, L.; Van den Bergh, PYK.; Thonnard JL.; et al (2007) ACTIVLIM: A rasch-built measure of activity limitations in children and adults with neuromuscular disorders, Neuromuscular disorders, Vol 17, pp 459-469, Elsevier
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| Other Information |
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This reference provides the development study of the ACTIVLIM questionnaire as well as the study of its reliability, validity and reproducibility.
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Reference 2
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| Reference Details |
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Vandervelde L.; Dispa D.; Van den Bergh P.Y.K.; et al (2008) Comparison between self-perceived and observed activity limitations in adults with neuromuscular disorders, Archives of physical medicine and rehabilitation, (in press), Elsevier
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| Other Information |
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Validation of the use of a self-reported questionnaire to assess activity limitations in adults with neuromuscular disorders.
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