Contributors

The following individuals, groups and organisations have graciously contributed their time and effort to ROM's development, implementation and maintenance, through testing and/or the provision of information with which the database will be populated. We wish to express our sincere thanks to all for this contribution, without which our task would be much more difficult.

ROM Development and Testing
  • Dr Anna Mayhew, SMA Network Co-ordinator, Institute Child Health, UCL, Funded by Jennifer Trust for SMA
  • Stephen Ashford, Clinical Specialist and Research Physiotherapist, Northwick Park Hospital
  • Michelle Eagle, Newcastle Muscle Centre
Provision of OM Data

The records that are currently accessible in the public domain are the result of contributions by the following individuals/organisations:

  • Mr Stephen Ashford, King's College London, Department of Palliative Care, Policy and Rehabilitation, School of Medicine and Regional Rehabilitation Unit, Northwick Park Hospital, London
  • J Duchêne, Université de Technologie de Troyes (UTT)
  • Michelle Eagle, Newcastle Muscle Centre
  • Dr Jean-Yves Hogrel**, Institute of Myology, Paris
  • Rudolf Korinthenberg, University Hopsital Freiburg, Germany, MD-Net
  • Dr Anna Mayhew, SMA Network Coordinator, Institute Child Health, UCL, Funded by Jennifer Trust for SMA
  • Leslie Nelson, PT, Children's Medical Center, Dallas
  • Dr Ros Quinlivan, The Wolfson Centre For Inheirted Neuromuscular Disease, Robert Jones and Agnes Hunt Orthopaedic NHS Trust
  • Dr Michael Rose, King's College London
  • Elaine Scott, Muscular Dystrophy Campaign
  • Birgit F. Steffensen, Senior Researcher Physiotherapist, RehabiliteringsCenter For Muskelsvind,[The National Rehabilitation Centre for Neuromuscular Diseases], Denmark
  • Laure Vandervelde, PhD, Jean-Louis Thonnard, PhD, Peter Van den Bergh, MD, PhD, Unit of Rehabilitation and Physical Medicine + Centre de Référence Neuromusculaire, Université Catholique de Louvain, Brussels, Belgium
  • Dr Maggie Walter, Friedrich-Baur-Institute, Department of Neurology, Ludwig-Maximilians-University Munich, Germany

Provision of Stage 1 Record Details

  • Dr Don Sanders*

* Contributed 5 records to the Registry.
** Contributed 10 or more records to the Registry.